QUINCY -- It will be difficult moving on from Cadan's Carnival, but Rome and Tiffany Frericks have seen the difference that the events have made in honor of their son.
The carnival commemorates the 12-day life of Cadan Christopher Frericks, who died in 2008 from congenital diaphragmatic hernia, a condition in which a hole develops in the diaphragm.
In its eight-year history, the carnival has raised $127,000 for CDH research at St. Louis Children's Hospital. Since the first carnival in 2009, the CDH survival rate has doubled, though only half of CDH babies live to see their first birthday.
The ninth and final Cadan's Carnival will take place from 1 to 5 p.m. Sunday at the Knights of Columbus, 700 S. 36th.
Tiffany Frericks said one of the goals of the couple was to increase CDH awareness and survival rates.
"When we started looking at what we wanted to accomplish and what we did accomplish, we really kind of thought maybe we've done it," she said. "It was a tough decision" to make this the last year for the carnival
After he was born, Cadan was treated with an ECMO machine -- a heart-lung bypass machine. At the time, an infant had a survival rate of about 20 percent at the hospital when placed on the machine. The survival rate has climbed to about 80 percent.
"When Cadan went on it, the nurses pretty much told us that he didn't have much of a chance," Frericks said.
Organizing the annual carnival is time-consuming. Many members of the organizing committee have families with growing children who are involved in various activities, making meetings difficult.
"They're just amazing people, and they're never going to tell us no," Frericks said, adding that the carnival has received tremendous support from the community, especially Refreshment Services Pepsi and Hy-Vee.
Admission to Cadan's Carnival is free.
This year's carnival will feature a costume contest, dancers, a demonstration by an Adams County Sheriff's Department K-9, a martial arts demonstration, carnival games, a petting zoo, hayrides, bounce houses, crafts and food.
For more information on the carnival, visit the event's Facebook page, Cadan's Carnival for CDH Awareness.